Rare dementias rob personality, then life

CNN.COM
Life was good for Kenny Sparks. ... At 49 he had it all. But then he began to change....Kenny has a condition known as frontotemporal dementia, or FTD.
"Many patients will lose their inhibitions; they'll act totally inappropriately, leaving their families to wonder what is wrong," said Dr. Murray Grossman, a neurologist with the University of Pennsylvania. "Some patients will have no problem spending the family fortune, taking all their money and putting it into scams, get-rich-quick schemes, or going off and buying an expensive car or boat the family doesn't need. The patients lose their reasoning."
"What's particularly frustrating for family members is, the patients don't seem to have much insight into the difficulties they are having or causing for others," Grossman said.

FTD affects approximately 250,000 Americans -- about 10 percent to 20 percent of all dementia cases -- and misdiagnosis is common, according to the Association for Frontotemporal Dementias.

...When Kenny's children visit, it can be hard for them to see him slip away.

"When he has his bad days and he lashes out it makes it hurt more, and that's when you have to blame the disease," said daughter Alexandra.

Son Graham agreed. "You've got to understand your dad is actually gone, and it's the disease."

Cheryl looks at it differently.

"Our doctor says if we don't take this on with a sense of humor our family will be destroyed," she said. "In so many ways we've been blessed. So we've got to keep going with a good heart."

"There is no one hardest part," Cheryl said. "Well, for me, knowing that the man I thought I was going to grow old with -- I'm not, I guess."

Cheryl stopped, and with tears in her eyes, realized, "Yes, that's the hardest part."

Accuracy In Detecting The Spiritual Realm Using "Triangulation"

Over at Sophies Ladder Jeff agrees that accuracy and reliability are important but his view of accuracy and reliability all stem from some "inner knowing". This contradicts commonly held principles about accuracy and reliability which generally holds that the source of the information is known, can be verified, represents real world states and can be depended on to accurately reflect real world states when verification is not a viable option and when planning needs to be done. But for the moment, I'll stipulate the Spiritual Realm exists.


The Sixth Sense, AKA The Spirit Detector
Jeff says

But the real world for the Bible is God and the spiritual realms
Any value placed in accuracy and reliability must therefore be in relation to the spiritual, inward truth.

In this passage he has presumed the existence of the spiritual realm. But he has not defined the spiritual realm. Where does he get the Idea that the spiritual real exists? Does he get it from the Bible? Surely he does not get it from the Bible with as much effort as he is making to distance himself from it. If he knows the spiritual realm exists, and he knows that he has the spirit indwelling, and he gets information from it, then Jeff has a spiritual detector built in. If Jeff has a spiritual detector built in, like he does for colors and sounds, then we probably all do. And in fact we have most of the world exercising their spiritual detectors in one way or another. Muslims, Hindus, (some) Buddhists, Jews, smaller religions outside the scope of the "Big Five" additionally Psychics, New Agers, Tarot Card readers, etc all have their Spiritual Detectors running gathering data that they use to make decisions with. However, there is little consistency in the data they are gathering, but as a I said, there is a little.

Measuring The Effectiveness of The Spirit Detector
Does the spiritual realm that he's talking about apply to the rest of those groups or is it Christian only? Which groups Spiritual Detector is collecting data that represents the state of the real world. In this sense, I mean real world to include the spiritual world. If the spiritual world exists, and it can be detected, it must overlap with humans and our earth. I suppose a good analogy would be like its another dimension. If the spiritual world can be detected, then it can be described, and if it can be described then uncertainty about it can be reduced, and if uncertainty about it can be reduced then we would have some way of measuring it in relation to other descriptions, then we could find which groups spiritual detector is the more accurate. If we can find which groups spiritual detector is more accurate, then we might be able to whittle away at the myriad of religions and their gods that exist today.

Collectors, Custodians, and Consumers
In Information and Data Quality concepts, there are three groups of people that are stakeholders in ensuring quality of accuracy of data and information. They are Collectors, Custodians and Consumers. One person can belong to any or all groups simultaneously. Jeff and the other spiritual detectors are in the Collector and the Consumer group. In IDQ it is presumed that the data collectors goal is accuracy. It is presumed that the information coming from the collectors will represent real world states, but Humans make mistakes so the data collected must be audited to ensure its accuracy. The way this is done is using the concept of "Triangulation".

Triangulation
Triangulation is an approach to data analysis that synthesizes data from multiple sources.
"Triangulation", University of California, San Francisco, Global health Sciences
"Triangulation", Wikipedia
It recognizes the need to cross-check (aka cross-examine) information to ensure accuracy and reliability. The accuracy and reliability that IDQ measures and was designed to obtain cannot be equivocated to suit the observer, it has to be able to be used and applied to such things as Safety in the industries of Health Care, Aviation, Maritime, Nuclear Power, Chemical Engineering, Construction etc.

Humans Make Mistakes And Triangulation Mitigates Them
So now we just need to figure out a way to triangulate the data coming from all those spiritual detectors and find what they have in common. We can take all that data and put it in a set and reduce it to the lowest common denominator and start comparing it to other things that are relatively well understood. As I said above, there is little consistency in the data they are gathering, but there is some. I know one group of items in the spiritual detector set off the top of my head that are common to all of those sets of spiritual detector data, Human Cognitive Bias. Humans make mistakes, that is why there is a need to audit the accuracy of the data collectors. In my opinion, unless there is some way to increase the likelihood of any those spiritual detectors being more accurate than any other, I can only commit to agnosticism about the spiritual realm and, in principal, decisions should not be made using ambiguous information.

Jeff says

"Reliability, on the other hand, I take to mean “can be dependably used” and so, obviously, reliability relates to the purposes intended."

Reliability is not an IDQ dimension, however it clearly is important. But the use of the information does not determine its quality. Poor quality data can be used to make a living with. Its called Fraud. Information can be presented in such a way as to be persuasive whether it accurately represents real world states or not.

TO BE CONTINUED.....

RECOMMENDED READING
Information and Data Quality (IDQ)
* Anchoring Data Quality Dimensions in Ontological Foundations
* Beyond Accuracy: What Data Quality Means To Consumers
* Data Quality Assessment
* Journey to Data Quality, from Amazon

IDQ Applied To The Bible
1. How Accurate is the Bible?
2. Applying Data and Information Quality Principles To The Bible
3. Applying IDQ Principles of Research To The Bible
4. Overview of IDQ Deficiencies Which Are Evident In Scripture
5. Jesus As God From IDQ Design Deficincies
6. "Son of Man" As Jesus From IDQ Deficiencies
7. IDQ Flaw of Meaningless Representation In The Bible

Triangulation
* "Triangulation", University of California, San Francisco, Global health Sciences
* "Triangulation", Wikipedia

IDQ Applied
National Transportation Safety Board information quality standards

Video, Stroke Induced Spirituality

Neuroscientist Jill Bolte Taylor had a stroke which allowed her to study the brain from the inside out. In this 20 min talk she describes how she was able to call for help and the feelings of spirituality that came over her as the left side of her brain was malfunctioning.


More links of interest:
from epilepsy.com
Famous religious figures with symptoms of epilepsy.
They include St. Paul, Joan of Arc and Soren Kierkegaard

From ScienceDaily
Out of body experience induced in the lab

From Debunking Christianity
Reasonable Doubt About The Soul